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What is Cystic Fibrosis?

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

Each week, three young lives are lost to Cystic Fibrosis.

Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.


The aims of this Website

The aims are simple, to bring awareness to Cystic Fibrosis and help create an enjoyable life as possible for Naomi. Naomi is two and a half years old and has Cystic Fibrosis. She looks just like children her own age however she cant run very far as she becomes breathless. She is often in Hospital to Chronic Infection and has Phudomones which is a virus that when caught cant be cured only kept at bay with the correct treatment. Naomi takes 14 tablets a day as well as 22mls of various medication. Naomi needs two hours of physio everyday which is very difficult as she doesn't like sitting still or lying down and physical exercise tires her out easily.


What is Cystic Fibrosis?

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

Each week, three young lives are lost to Cystic Fibrosis.

Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.


The aims of this Website

The aims are simple, to bring awareness to Cystic Fibrosis and help create an enjoyable life as possible for Naomi. Naomi is two and a half years old and has Cystic Fibrosis. She looks just like children her own age however she cant run very far as she becomes breathless. She is often in Hospital to Chronic Infection and has Phudomones which is a virus that when caught cant be cured only kept at bay with the correct treatment. Naomi takes 14 tablets a day as well as 22mls of various medication. Naomi needs two hours of physio everyday which is very difficult as she doesn't like sitting still or lying down and physical exercise tires her out easily.


What is Cystic Fibrosis?

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

Each week, three young lives are lost to Cystic Fibrosis.

Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.


The aims of this Website

The aims are simple, to bring awareness to Cystic Fibrosis and help create an enjoyable life as possible for Naomi. Naomi is two and a half years old and has Cystic Fibrosis. She looks just like children her own age however she cant run very far as she becomes breathless. She is often in Hospital to Chronic Infection and has Phudomones which is a virus that when caught cant be cured only kept at bay with the correct treatment. Naomi takes 14 tablets a day as well as 22mls of various medication. Naomi needs two hours of physio everyday which is very difficult as she doesn't like sitting still or lying down and physical exercise tires her out easily.


 

 

 

 

 

 

What is Cystic Fibrosis?

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

Each week, three young lives are lost to Cystic Fibrosis.

Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.


The aims of this Website

The aims are simple, to bring awareness to Cystic Fibrosis and help create an enjoyable life as possible for Naomi. Naomi is two and a half years old and has Cystic Fibrosis. She looks just like children her own age however she cant run very far as she becomes breathless. She is often in Hospital to Chronic Infection and has Phudomones which is a virus that when caught cant be cured only kept at bay with the correct treatment. Naomi takes 14 tablets a day as well as 22mls of various medication. Naomi needs two hours of physio everyday which is very difficult as she doesn't like sitting still or lying down and physical exercise tires her out easily.


 

 

What is Cystic Fibrosis?

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

Each week, three young lives are lost to Cystic Fibrosis.

Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.


The aims of this Website

The aims are simple, to bring awareness to Cystic Fibrosis and help create an enjoyable life as possible for Naomi. Naomi is two and a half years old and has Cystic Fibrosis. She looks just like children her own age however she cant run very far as she becomes breathless. She is often in Hospital to Chronic Infection and has Phudomones which is a virus that when caught cant be cured only kept at bay with the correct treatment. Naomi takes 14 tablets a day as well as 22mls of various medication. Naomi needs two hours of physio everyday which is very difficult as she doesn't like sitting still or lying down and physical exercise tires her out easily.


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

        

 

 

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Please click this picture to go to The Barnes Boy website, Two young brothers who both have Cystic Fibrosis.

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Have a look at the website from Laura, Marc and family as they continue Naomi's Fight in Edinburgh. Click on the flag to be re-directed.